My child with epilepsy had 80 seizures a day – until I put him on the keto diet

A woman whose child had seizures as a child claims that following the keto diet helped control them.

Susan Hall says her son’s rare epilepsy “got out of control” in 2000 when he was just 18 months old. Suffered up to 80 seizures a day with anticonvulsants barely helping.

Desperate, Hall turned to the keto — or keto — diet, which is claimed to help control seizures in children.

“Research has found that about half of children with epilepsy who follow the keto diet experience a 50% reduction in their seizures and 10 to 20% have epileptic seizures in children of 90% or more,” Hall told Insider, citing a report from Cleveland. clink. “Outside of treating seizures, doctors do not recommend the keto diet for children and adolescents.”

Ibn Hull was on a diet of 80% fat, consuming about 800 calories per day.

The child was diagnosed with a rare form of epilepsy after his first birthday.
Courtesy of Susan Hall

The keto diet focuses on fats — which provide up to 90% of your daily calories — with the goal of forcing your body to use a different type of fuel.

According to Harvard Health Publishing, instead of relying on sugar (glucose) that comes from carbohydrates — such as grains, legumes, vegetables, and fruits — the keto diet relies on ketone bodies, a type of fuel the liver produces from stored fat.

Hall says she consulted Jodi Tomer, a registered dietitian who headed the ketogenic diet team at Mott Children’s Hospital at the University of Michigan, and told her the diet wasn’t going to be easy. Hall was told her son would have to enter and maintain a “high degree of ketosis,” which Tomer says is “the state that causes the body to produce ketones, which are thought to be responsible for controlling seizures.”

The concerned mother described the diet as “stressful”, with a breakfast sample consisting of a “small portion” of carbohydrates with an equal amount of protein. The rest of the meal would consist of fat, and sometimes Hall would give her son a spoonful of olive oil.

Hall said her son still had daily epileptic fits — but she and her husband are only five or ten now, not the previous eighty.

Her son stopped the diet a year later when his neurologists suggested a “more aggressive treatment” to treat the seizures.

“While most people with epilepsy do not have intellectual disabilities, the years of uncontrolled seizures affected my son’s brain,” Hall says. “But his life is nothing but a tragedy.”

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